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UID:291@akpsupportgroup.org
DTSTART;TZID=America/New_York:20260628T153000
DTEND;TZID=America/New_York:20260628T153000
DTSTAMP:20260210T150604Z
URL:https://akpsupportgroup.org/events/all-kidney-patients-support-group-m
 onthly-zoom-meeting-2026-06-28/
SUMMARY:All Kidney Patients Support Group Monthly Zoom Meeting
DESCRIPTION:All Kidney Patients Support Group Monthly Zoom Meeting Featurin
 g Dan Holmes (FSGS) from Enlisted Kidney Foundation\nAbout Dan Holmes\nDan
  Holmes is a former U.S. Navy Combat Search and Rescue operator\, a 2024 N
 ephCure Impact Award recipient\, and one of the nation’s leading voices 
 in kidney disease advocacy. In April 2020\, he was diagnosed with Membrano
 us Nephropathy—a rare\, incurable kidney disease doctors said left littl
 e hope. But surrender was never in his DNA.\n​Separated from his wife du
 e to COVID-19 restrictions\, Dan approached the diagnosis like a tactical 
 rescue mission—studying the disease\, challenging doctors\, and refusing
  to accept defeat. In the process\, he uncovered a deeper injustice: his c
 ondition was linked to toxic exposure during a 2008 shipboard fire on the 
 USS George Washington. Despite clear evidence\, the VA denied his claims f
 or years.\nHis relentless fight finally broke through with the passage of 
 the PACT Act\, expanding benefits for veterans exposed to toxins. Dan has 
 since taken his mission national\, speaking before the FDA\, NIH\, the Nat
 ional Board of Nephrology\, and Congress—demanding better care\, faster 
 diagnoses\, and a seat at the table for patients.\nHis journey hasn’t be
 en easy. He’s survived two strokes\, a collapsed lung\, eight pulmonary 
 embolisms\, renal vein thrombosis\, and life-threatening medical errors. A
 t one point\, he was told it would be cheaper to bury him in Arlington tha
 n to keep him alive. But he fought on.\nWith the support of his family and
  the help from his close circle\, Dan entered partial remission—and tran
 sformed his personal battle into a national movement. Through the Enlisted
  Kidney Foundation\, he now helps others fight back\, find answers\, and d
 iscover their own warrior spirit.\nDan is a disruptor\, a survivor\, and a
  force for change in kidney disease advocacy. And he’s just getting star
 ted.\nThe Last Sunday of Every Month Unless Noted @ 03:30 PM Eastern Time 
 (US and Canada)\n\nRegister in advance for this meeting:\n\n\nhttps://us02
 web.zoom.us/meeting/register/tZ0rcu6vrDkjHNxYq2KocT3DcIe422GGO3oO\n\nMeeti
 ng ID896 5772 2968 \n\n 
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TZID:America/New_York
X-LIC-LOCATION:America/New_York
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DTSTART:20260308T030000
TZOFFSETFROM:-0500
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